I have been thinking about writing this blog post for at least a few months, but for a long time I didn't feel like I could. I didn't feel like I could write a post about infertility because our experience wasn't "official." We haven't seen any specialists yet and there hasn't been a diagnosis. Part of me felt like I wasn't justified in claiming to be a representative of those struggling with infertility.
But, I've come to the conclusion that feeling that way was wrong. My heartache isn't any less, nor is the waiting any easier. And on top of that, I've now had my regular doctor suggest that I do see a fertility specialist. So, I've decided it's finally time to tell my story. Too often, those who deal with infertility suffer in lonely silence because it's something that isn't often talked about. If sharing my story can help just one person who is suffering to feel less alone, or one person who has never gone through this to understand just a little more, then it will be worth it.
There is a lot I can say about my experience and my feelings, and lessons I am learning that I plan to share. However, I can't fit it all in one post, so for now I'll just tell you the facts of our experience.
When Jacob and I first got married, I was fine with waiting to start our family. We both still had at least a year of school left, and I wanted time to learn how to be a wife before I took on being a mother. After I graduated, and as time passed, I become more impatient to start our family. But while Jacob was still looking for a permanent job, I was okay with waiting. But as soon as he found his job, I was ready to be done with birth control, ready to finally welcome a little one to our family.
So, a little over two years ago I stopped taking the pill and started hoping. I knew that it would probably take about three months for the hormones in my body to get balanced again, but I hoped we wouldn't have to wait much longer than that for me to get pregnant. But three months came and went, and then three more months, and nothing. At this point the fears started to creep in; what if something was wrong, what if I could never get pregnant? There were a few months when I was a little late and I'd take a pregnancy test, wishing and hoping and praying that it would be positive. When it wasn't, I was disappointed, but I was still hopeful. And told myself that I would wait until we hit a year of trying before I let myself worry that much. But waiting was still hard.
Then, shortly before we hit the year mark I was waiting for, I started to have some strange symptoms that led to me seeing my doctor and getting some blood tests. They showed that my prolactin levels (a hormone) were a little high, but not at an alarming level. So, we decided we'd wait a month and then I'd get my blood tested again. In November 2013, when I went back to have them tested, my levels were even higher. At that point, my doctor told me that the most likely cause was something called a prolactinoma, a small tumor in my pituitary gland that was causing extra production of prolactin in my body. So, we scheduled an MRI to see if that was really what was going on.
At this point, I was pretty freaked out. While I understood that this kind of tumor wasn't usually cancerous, it was still scary. I mean, I had to get an MRI! In my head, only people with serious issues needing something like that. So, I scheduled my appointment and went into it anxious and scared. (Side note: MRIs don't scare me anymore, and after two, I feel like pro. They're just really, really loud, annoying, and boring.)
When the results of the MRI came back, they confirmed my doctor's suspicions. I had a tumor in my pituitary. But there was good news too; the tumor wasn't cancerous, and it was tiny. In fact, in most cases with such a small tumor, they wouldn't have even bothered with treatment. But, my doctor knew I wanted to get pregnant and that my high prolactin levels would mean that probably wasn't possible until something was done, so she sent me to an endocrinologist for treatment.
At the end of December 2013, I met with my endocrinologist and was put on a medication that should shrink my tumor and hopefully get rid of it completely. I'd be on that for six months, and then we'd do another MRI and see if the treatment was working. While I was glad that there was an available treatment, the downside was that we wouldn't even be able to try to get pregnant during that time. I'd already waited a year for a baby, and now I was being told that the wait would have to be even longer. It was especially hard because the meds would have actually made it more likely that we could get pregnant, I just would have had to stop taking them if that did happen, and they wanted to make sure the treatment was as complete as possible.
The six months passed, but they seemed to last forever. My symptoms went away quickly and a blood test at three months in showed that my prolactin levels were lower, so we were hopeful the treatment was working. The results of the second MRI came back with no signs of the tumor, and I was so happy. There was a chance that the tumor could come back if I went off of the treatment, but when I told my endocrinologist that we really wanted to get pregnant, he agreed that it would be okay for me to go off the meds for the time being and start trying again, I just had to have a follow up appointment with him six months later.
I was thrilled. Finally, we could start trying to expand our family again. Life was fantastic, and after six months of being mostly depressed, I was happy and hopeful again. Then, in August 2014, my symptoms started coming back. For the first day or two, I was in denial, but as they didn't disappear again, my joy plummeted. So, I made another appointment with my endocrinologist, and the blood tests they did showed that my prolactin levels were back up. I didn't have another MRI, but it was easy to assume that my tumor was back. While it's probably still tiny, the doctor said it was really active.
So, I went back on the medication again. This time, we're allowed to keep trying to get pregnant, with the plan that I will just go off the meds if/when that happens. I'm pretty sure that's the only way I was able to handle this setback without completely breaking. Until then, I have a follow up with my endocrinologist every few months to test my prolactin levels. They're under control again, but as my regular doctor said to me, it's basically 100% sure that the craziness with them has had some role to play with us not getting pregnant.
I don't know how much longer we'll have to wait, and every day and month that passes breaks my heart a little more. I don't know exactly what is keeping us from getting pregnant. I'm currently working on getting in to see a specialist my doctor recommended, but for now, all we can do is wait and hope and pray. And so far, that is our story.
If you've gotten this far, thanks for reading, it means a lot to me. In the next few days I plan to write a post or two with more details of how this experience has affected me and what I'm trying to learn from it, but since this post is already rather long, I'll be done for now. Just keep an eye out for more posts. And, if you have specific questions you want answered, feel free to ask them and I'll do my best.